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Wisdom From A Three Time Survivor

Posted on October 22, 2015

Screen This Too

You may remember our dynamic volunteer Amy Kaplan from our Hero of the Month spotlight on October 2013. As a woman who’s survived colon, cervical and breast cancer, Amy knows the importance of protecting all your assets. We got another chance to speak with Amy about her story, the importance of screening and the message she wants to share with all women.

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Speak Up, Speak Out on Preventive Services Task Force Recommendations

Posted on October 20, 2015


We recently shared the US Preventive Services Task Force (USPSTF) draft recommendations on screening for colon cancer where they did not recommend CT Colonography or FIT-DNA, available as Cologuard, the newest FDA-approved at-home screening test, as primary screening methods. However, there’s something you can do to change that: visit the USPSTF website to read their draft recommendations and leave a comment before November 2, 2015 to let your voice be heard!

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In Memoriam: Remembering Harry

Posted on October 19, 2015

Remembering Harry

The Colon Cancer Alliance’s family is deeply saddened as we mourn the death of our volunteer and dear friend, Harry Gorlick, who died October 5, 2015.  ​Harry felt that being ​with ​his fellow chatters in our chat room​,​ and being a Buddy to newly diagnosed patients​,​ and supporting our members on our ​Blue Hope Nation Facebook page,​ is what​ helped him ​​cope with his disease. It was important to Harry that anyone he met along this journey would find support through our programs and not feel alone. His ability to make “newbies” feel comfortable was his legacy.

​He’d break the ice, using humor to make people laugh and feel at ease because he knew that ​this ​is what unite​d​ ​those with ​th​e disease and how strangers quickly bec​a​me friends. Harry was so kind, so caring, so funny and a special friend to all who knew him. There are no words to adequately express our sadness, but his fellow chat moderators wanted to try. In their own words: Read more

Proposed Non-Discrimination Rule: An Important Protection for Cancer Patients

Posted on October 15, 2015


For cancer patients, or anyone with a chronic disease, one of the most valuable elements of the Affordable Care Act (ACA) is that you cannot be denied health insurance based on a pre-existing condition. Unfortunately, some health plans appeared to negate this protection by offering “adverse tiering” as a plan component. What this means is particular drugs used to treat a specific condition are likely to have an extremely high co-pay or co-insurance requirement. For example, cancer and HIV drugs were most likely to be placed with high co-pays that are costly and out of reach for most Americans. What this comes down to is someone with cancer could buy health insurance without issue, but if they choose a plan with adverse tiering, they may not be able to afford the drugs used to treat their condition.

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Hero of the Month: Marisa Perez

Posted on October 13, 2015


Depending on who you are, you may call her Marisa, “mom” or “The Colon Chick!” Marisa Perez has a passion for colon cancer prevention and an enthusiasm that can get anyone excited about screening. The mother of two has been running a colon cancer screening program for the last nine years and shows no signs of slowing down. This month, she organized a successful Screen This Too! luncheon where she stressed the importance of protecting all of your assets this October—including your colon. This dedication to prevention is just one of the many reasons we’re honored to spotlight Marisa as our Hero of the Month.

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