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INFOGRAPHIC: What You Said about Research

Posted on September 6, 2016

Last month, we debuted a survey asking you, our Colon Cancer Alliance friends and family, what you thought was worth investing in. Nearly 200 of you filled out the questions, telling us what you thought was important to you, and what you’d like to see us prioritize. Thank you to all of you who took the time to respond!

Here’s what you said. Read more

Wearing Colorectal Cancer on Your Sleeve – Sort of

Posted on August 31, 2016

We recently collaborated with the online patient community Smart Patients on an empathy-building program called #ColorectalCancer1day. Together we matched patients and caregivers affected by colorectal cancer (“teachers”) with researchers and clinicians from Kaiser Permanente who wanted to learn more about what one day with colorectal cancer feels like (“learners”). We’re now sharing the highlights from this learning experience with a broader audience. Read more

We Can’t Wait for the Blue Hope Bash!

Posted on August 3, 2016

Blue Hope Bash Photo Only (1)

We can’t wait for October 20th. Why? That’s the night we’re holding the 6th Annual Blue Hope Bash at the Fairmont in Washington DC!

This annual gala celebrates our community’s patients and survivors, the commitment of our incredible supporters, and showcases how important you each are to our mission. This year, we are excited to debut the Colon Cancer Alliance’s vision for 2017.

Our festive evening includes a silent and live auction, raffles, a fun-filled program and some special surprise guests! Read more

Cancer Moonshot Initiative Fosters Breakthrough Collaboration

Posted on June 29, 2016


Release of More Current Clinical Trials Data Gives Patients Access to Better Information Faster

Today, we announced our breakthrough collaboration with online patient community Smart Patients on a free Clinical Trials Database and online community for patients with colorectal cancer. These tools use data from—made available today by the National Cancer Institute (NCI) as part of the Cancer Moonshot Summit hosted by Vice President Biden in Washington, DC. Smart Patients was selected by the NCI and the VP’s office to receive early access to this new data in order to provide feedback and incorporate the data into the Smart Patients online patient community.

Read more

BREAKING: USPSTF Responds to Concerns, Releases Final Screening Report

Posted on June 16, 2016


The Colon Cancer Alliance applauds the final report from the U. S. Preventive Services Task Force (USPSTF) on screening for colorectal cancer.

First and foremost, the USPSTF has maintained its “A” grade to screening for colorectal cancer; recognizing the high level of certainty that screening reduces colorectal cancer mortality and recommending that adults between the ages of 50 and 75 get timely screening.

Secondly, the final report resolves the concerns we expressed regarding several items in the initial draft report, including labeling some screening methods as “recommended” and others as “alternative.”

We specifically named these tests in our concerns as a major barrier to screening for Americans, and we applaud the USPSTF for widening its inclusion for these newer and proven tests.

Read more