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Cancer Moonshot Initiative Fosters Breakthrough Collaboration

Posted on June 29, 2016

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Release of More Current Clinical Trials Data Gives Patients Access to Better Information Faster

Today, we announced our breakthrough collaboration with online patient community Smart Patients on a free Clinical Trials Database and online community for patients with colorectal cancer. These tools use data from www.cancer.gov—made available today by the National Cancer Institute (NCI) as part of the Cancer Moonshot Summit hosted by Vice President Biden in Washington, DC. Smart Patients was selected by the NCI and the VP’s office to receive early access to this new data in order to provide feedback and incorporate the data into the Smart Patients online patient community.

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BREAKING: USPSTF Responds to Concerns, Releases Final Screening Report

Posted on June 16, 2016

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The Colon Cancer Alliance applauds the final report from the U. S. Preventive Services Task Force (USPSTF) on screening for colorectal cancer.

First and foremost, the USPSTF has maintained its “A” grade to screening for colorectal cancer; recognizing the high level of certainty that screening reduces colorectal cancer mortality and recommending that adults between the ages of 50 and 75 get timely screening.

Secondly, the final report resolves the concerns we expressed regarding several items in the initial draft report, including labeling some screening methods as “recommended” and others as “alternative.”

We specifically named these tests in our concerns as a major barrier to screening for Americans, and we applaud the USPSTF for widening its inclusion for these newer and proven tests.

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Charity Navigator 4-Star Rating: Six Years of High Honors

Posted on June 10, 2016

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We are proud to announce we have been honored with Charity Navigator’s coveted 4-star Charity Navigator rating for the sixth consecutive year! This is the highest rating a charity can receive.

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Survivor Week 2016: You Might Be A Cancer Survivor If…

Posted on June 4, 2016

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This post is a part of the weeklong #LiveBrave series in celebration of Survivors Week

Before the days of our online group chats, there was My CCA Support—a place where patients and survivors could gather online to ask questions, share stories and get advice. Our community now gathers in Blue Hope Nation and Colontown, but the legacy of My CCA Support lives on with legendary discussions like this “You Might Be A Cancer Survivor If…” post, started by volunteer John Lloyd.

In honor of Survivor Week, we’ve revived this list as a way to celebrate the things that make being a colon cancer survivor unique and showcase the good, the bad and the ugly in a lighthearted way.

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Survivor Week 2016: Sexuality As A Survivor

Posted on June 2, 2016

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This post is a part of the weeklong #LiveBrave series in celebration of Survivors Week

A colon cancer diagnosis can affect many areas of your life—some you may feel more comfortable discussing than others. One often taboo, but important, topic is sexuality, which many survivors identify as an under-addressed area.

You may find yourself trying to wrap your head around multiple sexual issues, such as fertility questions, communicating with your partner and loss of desire after a diagnosis. In fact, sexual dysfunction is one of the most common side effects of cancer treatment. While it can be tough, it’s important to remember you’re not alone.

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