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The Future of the ACA: What We Know So Far

Posted on December 21, 2016

Everyone wants to know what’s happening to the Affordable Care Act (Obamacare). The short answer is: no one knows. Here are the top options:

  1. Do nothing
  2. Keep with improvements
  3. Repeal and Replace
  4. Repeal only

Read more

Welcome William-Jose Velez, Communications Coordinator!

Posted on December 20, 2016

Help us welcome William-Jose, a new member of the Colon Cancer Alliance family! As Communications Coordinator, William-Jose will be jumping right into the marketing duties and communications needs of the Colon Cancer Alliance. We’re excited to have him join the team!   Read more

21st Century Cures Act: Better Late Than Never Holiday Gift to Patients

Posted on December 19, 2016

In 2014 the House Energy and Commerce Committee held eight hearings on developing legislation that would help accelerate the development of new treatments for cancer and other serious diseases.  In April the following year our blog called on Congress to stop talking and take action and we were thrilled in July of 2015 when the House passed the 21st Century Cures Act, likely the only piece of legislation that the House Republicans and President Obama both supported.  Unfortunately the Senate decided to bicker over the funding level for the National Institutes of Health (NIH) and the legislation appeared to die in a partisan stalemate. Read more

Charles’ Story

Posted on December 15, 2016

Charles Griffin, Jr. was diagnosed with stage IV colon cancer at the age of 32. Shortly after, he discovered the Colon Cancer Alliance through our Facebook group COLONTOWN. It opened his eyes to the wonderful community of support for those impacted by this disease! Read his story below.  Read more

Tough Topics: How to Talk about Dying

Posted on December 13, 2016

Several people close to me died this year, and I’ve worked with dying people for a while. I’ve also been close to dying myself (technically I died once, but that’s a story for a different day; I got better). Death and dying makes people feel uncomfortable; most people don’t know what to say or do.

I’ve found some things are always appropriate to say. People never tire of hearing you love, care about and respect them. Everyone enjoys talking about old times and shared memories and it’s okay to talk about whatever you used to talk about before they got sick. Do remember however, that listening is the most important conversational skill. Read more